Abstract

The purpose of this study is to evaluate the impact of virtual support sessions for caregivers of those with rare diseases on anxiety and coping. Caregivers of loved ones with rare diseases experience many challenges that may increase anxiety. These may include managing the long-term effects of the disorder, early mortality, or concerns about leaving their adult loved one without a caregiver. Stressors associated with providing care to chronically ill family members may impact psychological and physical well-being.

Author Details

Andrea I. Bowling, DNP, MSN, APRN, FNP-C

Sigma Membership

Rho Epsilon

Type

DNP Capstone Project

Format Type

Text-based Document

Study Design/Type

Quality Improvement

Research Approach

Pilot/Exploratory Study

Keywords:

Primary Caregivers, Anxiety, Coping

Advisor

Kelly Carlson

Second Advisor

Sarah E. Sheppard

Degree

DNP

Degree Grantor

Regis College

Degree Year

2024

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

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