Abstract

The parental home is the predominant place of residence for adults with developmental disabilities/ intellectual disabilities (DD/ID) (Heller et al., 2007). More than 75% of the adult population with DD/ID, living in the US, continue to have their basic needs provided by parents (Williamson & Perkins, 2014). This is based on the estimated statistic of 1.0 to 1.58% of the entire U.S. adult population has a developmental disability (Anderson et al., 2019; Fox et al., 2015). About 2.9 million adults with DD/ID live with a parent 55 years (Byun et al, 2006), with more than 25% of these parents older than 60-years (Braddock et al., 2013). The predominance of aging parents as the source of long-term care seems to be the result of such factors as lack of appropriate housing, services, and supports, as well as discrimination in general (AAIDD, 2013). The study specific aims: 1. Describe the common meanings and shared practices of parenting an adult with DD/ID. 2. Understanding the challenges parents face in their current lives and the resources they use to meet those challenges. 3. Elucidate the practical advice they have for others who want to be supportive of the efforts of parenting an adult with DD/ID. The methodological approach is a Heideggerian hermeneutic approach using deWitt and Ploeg's (2006) framework for rigor.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 30417304; ProQuest document ID: 2835799518. The author still retains copyright.

Author Details

Siri Gurunam Kaur Khalsa, PhD

Sigma Membership

Gamma Sigma

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Phenomenology

Research Approach

Qualitative Research

Keywords:

Developmental/Intellectual Disabilities, Adult Children, Parenting Experiences

Advisor

Barbara I. Damron

Second Advisor

Suzanne S. Dickerson

Third Advisor

Jonwong Lee

Fourth Advisor

Judy Liesveld

Degree

PhD

Degree Grantor

The University of New Mexico

Degree Year

2023

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2023-09-13

Full Text of Presentation

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