Abstract

An identified gap in the literature exists regarding studies using an inductive approach that allow caregivers to describe the lived experience of caring for family members dependent upon hemodialysis for managing end stage kidney disease. This study used a purposive sample of six caregiver participants, male and female, with an average age of 36 using a descriptive, phenomenological approach designed to share experiences of providing care to a family member dependent on hemodialysis. The representative sample was recruited from a mid-sized hospital in the mid-Atlantic region of the United States. The investigator conducted face-to-face, semistructured interviews with participants. Using the Giorgi method of data analysis, six major themes and 12 sub-themes were identified. Perceptions of the caregiver participants were that caregiving is hard work and stressful; however, caregivers found the experience meaningful. Caregivers identified they need a support system and the stress of caregiving interferes with their own health. Uncertainty regarding the indeterminate time a family member will use hemodialysis added stress to caregivers. Study limitations included a sample with one male participant, which may limit understanding of the male caregiver perspective and included participants who only spoke English. Study results should interest caregivers and healthcare professionals working with caregivers of family members dependent on hemodialysis. Further research should include the effects of exercise, spirituality, and the cultural differences for caregivers providing care for family members dependent upon hemodialysis. A longitudinal study examining long-term effects of caregiving with this population is warranted.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3736214; ProQuest document ID: 1749012039. The author still retains copyright.

Author Details

Christine Kearney Turner, PhD, RN

Sigma Membership

Gamma Omega

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Phenomenology

Research Approach

Qualitative Research

Keywords:

Caregiving, Family Caregivers, Kidney Disease, Hemodialysis

Advisor

Patricia Finch-Guthrie

Second Advisor

Anne Brett

Third Advisor

Susan Orshan

Degree

PhD

Degree Grantor

University of Phoenix

Degree Year

2015

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2022-04-20

Full Text of Presentation

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