Abstract

Patient-generated health data (PGHD) are data collected by patients that can be used to screen for health problems or monitor progress toward health goals. These data may be especially useful for those with chronic health conditions such as pediatric asthma, as PGHD reflect the day-to-day status and home behaviors. Without access to PGHD within clinical workflows, clinicians working to personalize care and treat patients at an individual level may have an incomplete picture of those patients. A thorough understanding of information needs and display preferences is required to present PGHD in the clinical documentation without causing information overload. The aims of this study were to (a) determine the extent of and describe the characteristics of PGHD integration into electronic health records (EHRs) by conducting a scoping review of the literature; (b) identify tasks, decisions, and information needs derived from pediatric asthma clinical guidelines and align them with PGHD types; and (c) investigate provider preferences for the graphical display of pediatric-asthma PGHD. We used Arksey and O'Malley's framework for scoping reviews and examined PGHD capture, transfer, and review.

Description

This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 27995143; ProQuest document ID: 2694409420. The author still retains copyright.

Author Details

Victoria L. Tiase, PhD, RN, NI-BC, FAAN, FAMIA, FNAP

Sigma Membership

Gamma Rho

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Other

Keywords:

Mobile Health, Patient-Generated Health Data, Provider Preferences, Asthma

Advisor

Mollie Cummins

Second Advisor

Katherine Sward

Degree

PhD

Degree Grantor

The University of Utah

Degree Year

2020

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Date of Issue

2024-07-19

Full Text of Presentation

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