Abstract

This mixed-methods study examines disparities in referral and enrollment rates for Early Intervention (EI) services among children under age three at risk for or diagnosed with developmental delays. The research focuses on a cohort of children referred from Neonatal Intensive Care Units (NICUs) to High-Risk Clinics or BabyNet services who did not receive recommended services. Qualitative and quantitative data were collected to analyze referral and enrollment rates, identify factors associated with underutilization, and explore provider and parental perceptions of EI services. Common barriers to accessing services and characteristics influencing enrollment were also identified.

Existing studies have highlighted the importance of EI services in mitigating developmental delays, yet significant disparities exist in referrals and enrollment among underserved populations. While prematurity is a known risk factor, limited research explores referral discrepancies within minority populations or the influence of state policies on referral practices. Limited data link state policies to referral rates, and only a handful of studies address provider perceptions or design interventions to increase service utilization in underserved groups.

This research study provided insight into underutilization and disparities in EI programs in underserved populations. Through this study, researchers identified underserved groups not being referred to or receiving services from Early Intervention (EI) programs, common measurement tools used to assess developmental delays, and barriers to accessing EI services. This study offers new information related to the use of EI services, which can inform interventions to increase enrollment rates in minority populations.

Notes

References:

Barnard-Brak, L., Morales-Alemán, M. M., Tomeny, K., & McWilliam, R. A. (2021). Rural and Racial/Ethnic Differences in Children Receiving Early Intervention Services. Family & community health, 44(1), 52–58. https://doi.org/10.1097/FCH.0000000000000285

Description

This session examines disparities in Early Intervention (EI) referrals and enrollment among underserved populations, highlighting barriers, provider and parental perceptions, and key factors influencing service utilization. Participants will gain insights to inform strategies for improving EI access and enrollment for at-risk children under age three.

Author Details

Michelle Y. Gilbert, PhD, RN, AGCNS-BC, CNE

Sigma Membership

Alpha Beta Chi

Type

Poster

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Mixed/Multi Method Research

Keywords:

Health Equity, Social Determinants of Health, Clinical Practice, Health Promotion, Disease Prevention

Conference Name

48th Biennial Convention

Conference Host

Sigma Theta Tau International

Conference Location

Indianapolis, Indiana, USA

Conference Year

2025

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record. All permission requests should be directed accordingly and not to the Sigma Repository. All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

Abstract Review Only: Reviewed by Event Host

Acquisition

Proxy-submission

Date of Issue

2025-12-01

Click on the above link to access the poster.

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Identifying Barriers to Accessing Early Intervention Services

Indianapolis, Indiana, USA

This mixed-methods study examines disparities in referral and enrollment rates for Early Intervention (EI) services among children under age three at risk for or diagnosed with developmental delays. The research focuses on a cohort of children referred from Neonatal Intensive Care Units (NICUs) to High-Risk Clinics or BabyNet services who did not receive recommended services. Qualitative and quantitative data were collected to analyze referral and enrollment rates, identify factors associated with underutilization, and explore provider and parental perceptions of EI services. Common barriers to accessing services and characteristics influencing enrollment were also identified.

Existing studies have highlighted the importance of EI services in mitigating developmental delays, yet significant disparities exist in referrals and enrollment among underserved populations. While prematurity is a known risk factor, limited research explores referral discrepancies within minority populations or the influence of state policies on referral practices. Limited data link state policies to referral rates, and only a handful of studies address provider perceptions or design interventions to increase service utilization in underserved groups.

This research study provided insight into underutilization and disparities in EI programs in underserved populations. Through this study, researchers identified underserved groups not being referred to or receiving services from Early Intervention (EI) programs, common measurement tools used to assess developmental delays, and barriers to accessing EI services. This study offers new information related to the use of EI services, which can inform interventions to increase enrollment rates in minority populations.