Abstract

Background: Cancer-Related Cognitive Impairment (CRCI), often termed "chemo brain," impacts 50-70% of chemotherapy patients and 12-75% of cancer survivors, with symptoms such as memory difficulties, attention issues, and executive dysfunction potentially lasting up to 20 years. Most research has centered on breast cancer, leaving gaps for other cancer types. Non-treatment factors can also induce CRCI, including the cancer itself. The mechanisms of CRCI share similarities with Alzheimer's disease. Currently, there is no standardized assessment tool for CRCI, emphasizing the need for tailored evaluation methods.

Objective/Specific Aims: This study aims to assess CRCI in patients with current cancer diagnoses and explore how CRCI affects their caregivers. Four specific aims include: 1) assessing cognitive decline in patients and comparing it to caregiver perceptions, 2) exploring caregivers’ views on the usability of cognitive screening tools, 3) evaluating caregiver burden in relation to patients' cognitive functioning, and 4) identifying educational and intervention needs for patient safety at home.

Study Design: Utilizing a mixed-methods approach, this study will integrate quantitative and qualitative assessments. Cognitive decline in chemotherapy patients will be measured with a standardized tool, also administered to caregivers. Caregiver burden and the usability of cognitive screening tools will be evaluated through validated questionnaires and the analysis of responses to open-ended questions.

Cancer Relevance: This study focuses on survivorship research aimed at improving the quality of life for cancer survivors and caregivers. It addresses significant gaps in current CRCI research and is particularly relevant to Oklahoma, a state with high cancer incidence and mortality rates. The focus on collaboration between patient, caregiver, and healthcare team reflects the Biennium theme of "Represent. Reflect. Respect. Respond." by advancing holistic and inclusive approaches necessary to improve cancer survivorship outcomes.

Notes

References:

Haywood D, Dauer E, Baughman FD, Lawrence BJ, Rossell SL, Hart NH, & O'Connor, M. (2023). Is my brain ever going to work fully again? Challenges and needs of cancer survivors with persistent cancer-related cognitive impairment. Cancers, 15. doi: 10.3390/cancers15225331

Janelsins MC, Heckler CE, Peppone LJ, et al. Cognitive complaints in survivors of breast cancer after chemotherapy compared with age-matched controls: an analysis from a nationwide, multicenter, prospective longitudinal study. J Clin Oncol. 2017;35(5):506-514. doi: 10.1200/JClinOncol.2016.68.5826

Mayo, SJ, Lustberg M, Dhillon HM, Nakamura ZM, Allen DH, Von Ah D, Janelsins MC, Chan A, Olson K, Tan CJ, Toh YL, Oh J, Grech L, Cheung YT, Subbiah IM, Petranovic D, D'Olimpio J, Gobbo M, Koeppen S, … Peters KB. (2021). Cancer-related cognitive impairment in patients with non-central nervous system malignancies: an overview for oncology providers from the MASCC neurological complications study group. Supportive Care in Cancer, 29, 2821-2840. https://doi.org/10.1007/s00520-020-05860-9

Additional references included in attached poster.

Description

The study aims to compare patient-reported cognitive decline with caregiver assessment, evaluate caregiver perceptions of cognitive screening tools, assess caregiver burden, and identify educational and intervention needs. Preliminary findings are expected to highlight discrepancies between patient and caregiver to perceptions, demonstrate the need to create tailored screening tools, and reveal a need for targeted educational interventions to improve patient safety and relieve caregiving burden.

Author Details

Katy Fisher-Cunningham, PhD, RN, CNE, CHSE; Trista Anderson, PhD, RN

Sigma Membership

Beta Delta at-Large

Type

Poster

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Mixed/Multi Method Research

Keywords:

Hospice, Palliative Care, or End-of-Life, Acute Care, Instrument and Tool Development, Promoting Clinical Outcomes, Cancer-related Cognitive Impairment, Chemo Brain, Assessing Cognitive Impairment, Caregiver Perception

Conference Name

48th Biennial Convention

Conference Host

Sigma Theta Tau International

Conference Location

Indianapolis, Indiana, USA

Conference Year

2025

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record. All permission requests should be directed accordingly and not to the Sigma Repository. All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

Abstract Review Only: Reviewed by Event Host

Acquisition

Proxy-submission

Date of Issue

2025-12-05

Click on the above link to access the poster.

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Assessment of Cognitive Decline During Cancer Treatment: A Mixed-Methods Study

Indianapolis, Indiana, USA

Background: Cancer-Related Cognitive Impairment (CRCI), often termed "chemo brain," impacts 50-70% of chemotherapy patients and 12-75% of cancer survivors, with symptoms such as memory difficulties, attention issues, and executive dysfunction potentially lasting up to 20 years. Most research has centered on breast cancer, leaving gaps for other cancer types. Non-treatment factors can also induce CRCI, including the cancer itself. The mechanisms of CRCI share similarities with Alzheimer's disease. Currently, there is no standardized assessment tool for CRCI, emphasizing the need for tailored evaluation methods.

Objective/Specific Aims: This study aims to assess CRCI in patients with current cancer diagnoses and explore how CRCI affects their caregivers. Four specific aims include: 1) assessing cognitive decline in patients and comparing it to caregiver perceptions, 2) exploring caregivers’ views on the usability of cognitive screening tools, 3) evaluating caregiver burden in relation to patients' cognitive functioning, and 4) identifying educational and intervention needs for patient safety at home.

Study Design: Utilizing a mixed-methods approach, this study will integrate quantitative and qualitative assessments. Cognitive decline in chemotherapy patients will be measured with a standardized tool, also administered to caregivers. Caregiver burden and the usability of cognitive screening tools will be evaluated through validated questionnaires and the analysis of responses to open-ended questions.

Cancer Relevance: This study focuses on survivorship research aimed at improving the quality of life for cancer survivors and caregivers. It addresses significant gaps in current CRCI research and is particularly relevant to Oklahoma, a state with high cancer incidence and mortality rates. The focus on collaboration between patient, caregiver, and healthcare team reflects the Biennium theme of "Represent. Reflect. Respect. Respond." by advancing holistic and inclusive approaches necessary to improve cancer survivorship outcomes.