Abstract

Multiple sclerosis (MS) is a chronic, progressive neurological disease characterized by complex physical, psychological, and emotional challenges that profoundly impact patients’ quality of life. Despite advances in symptom management, the multifaceted suffering experienced by individuals with MS remains inadequately measured, understood, and addressed. This study aimed to develop and validate the Wilder Multiple Sclerosis Suffering Index (WMSSI), a novel tool designed to quantitatively measure the unique dimensions of suffering in this population.

Author Details

Carolyn Ann Wildera, PhD, BSN RN Registered Nurse Department of Neurosciences University of California San Diego, San Diego, CA 92121 Ph.D. Candidate Loma Linda University School of Nursing | Jennifer Gravesa, MD, PhD, MAS Director UCSD Neuroimmunology Research Program Department of Neurosciences University of California – San Diego, San Diego, CA 92121 | Salem O. Dehomb, PhD Professor School of Nursing Loma Linda University, Loma Linda CA 92350 | Amanda L. Goodinga, PhD, ABPP-CN Board Certified Clinical Neuropsychologist Department of Psychiatry University of California – San Diego, San Diego, CA 92121 | Elizabeth J. Taylorb, PhD, RN, FAAN Professor School of Nursing Loma Linda University, Loma Linda CA 92350

Sigma Membership

Gamma Alpha

Type

Dissertation

Format Type

Text-based Document

Study Design/Type

Other

Research Approach

Mixed/Multi Method Research

Keywords:

Multiple Sclerosis, Suffering, Psychometrics

Advisor

Elizabeth J. Taylor

Second Advisor

Jennifer Graves

Degree

PhD

Degree Grantor

Loma Linda University

Degree Year

2024

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record. All permission requests should be directed accordingly and not to the Sigma Repository. All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Review Type

None: Degree-based Submission

Acquisition

Proxy-submission

Full Text of Presentation

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