Other Titles

Special Session/Plenary Session

Other Titles

2025 International Nurse Researcher Hall of Fame Honoree Presentation

Abstract

The purpose of this presentation is to highlight key findings from my program of research concerning families of individuals with Down syndrome. Early studies with these families predominantly focused on problems and deficits, while my work highlights the strengths and resilience these families often exhibit. My program of research has contributed to a more nuanced understanding of these families by emphasizing the dynamic processes that enable families to adapt successfully to adversity.

Notes

References:

1. Van Riper, M., Knafl, G. J., Knafl, K. A., do Céu Barbieri-Figueiredo, M., Barnoy, S., Caples, M., Choi, H., Cosgrove, B., Duarte, E. D., Honda, J., Marta, E., Phetrasuwan, S., Alfieri, S., Angelo, M., Deoisres, W., Fleming, L., Dos Santos, A. S., & da Silva, M. J. R. (2024). Family adaptation in families of individuals with Down syndrome from 12 countries. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 196 (1), e32075. https://doi.org/10.1002/ajmg.c.32075

2. Van Riper, M., Cosgrove, B., & Fleming, L. (2023). Adaptation at the family level in families of individuals with Down syndrome: A scoping review. Journal of Family Nursing, 29(4), 324-347.

Author Details

Marcia L. Van Riper, PhD, RN, FAAN

Sigma Membership

Alpha Alpha

Type

Presentation

Format Type

Text-based Document

Study Design/Type

Expert Opinion (nationally/internationally recognized)

Research Approach

N/A

Keywords:

Down Syndrome, Families of Individuals with Down Syndrome, Adaptation, Stress and Coping, Resilience

Conference Name

36th International Nursing Research Congress

Conference Host

Sigma Theta Tau International

Conference Location

Seattle, Washington, USA

Conference Year

2025

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

Review Type

Invited Presentation

Acquisition

Proxy-submission

Click on the above link to access the slide deck.

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Adaptation and Resilience in Families of Individuals with Down Syndrome

Seattle, Washington, USA

The purpose of this presentation is to highlight key findings from my program of research concerning families of individuals with Down syndrome. Early studies with these families predominantly focused on problems and deficits, while my work highlights the strengths and resilience these families often exhibit. My program of research has contributed to a more nuanced understanding of these families by emphasizing the dynamic processes that enable families to adapt successfully to adversity.