Abstract
Background and Significance: Many children with end-stage liver disease have their lives extended by liver transplantation, growing into adolescence and even adulthood. Therefore, it is important to understand the long-term health outcomes of liver transplantation and provide relevant assistance during this developmental process. However, there is a lack of domestic research on the long-term and comprehensive health outcomes of pediatric liver transplantation, and less attention is paid to the children's own self-care ability and development.
Objective: To understand the attributes, health-related quality of life, and chronic disease self-care ability of adolescents who have received liver transplantation in early childhood and entered puberty, and to explore the correlation between health quality of life and chronic disease self-care ability.
Method: This study will employ a mixed-method convergent parallel design to recruit adolescents who had previously undergone liver transplantation. The quantitative research phase will use a structured questionnaire to collect data, including basic personal information, long-term health status, PedsQL generic core scale 4.0 (13-18 years old), and Self-Care of Chronic Illness Inventory V4c. Simultaneously, a qualitative study will be conducted using semi-structured interviews to collect data. The interview guides include the impact of liver transplantation on the individual, their life, and their family, as well as their hopes for support from medical professionals and parents.
Quantitative data were analyzed using SPSS 16.0 software, including descriptive statistics, independent t-test, one-way analysis of variance, linear regression and Pearson product-moment correlation. Qualitative data were analyzed using NVivo software, and thematic analysis was used to summarize the data themes.
Expected outcomes: The study outcomes are expected to provide comprehensive information on the current status of liver transplant adolescents' health quality of life and chronic disease self-care capabilities. This will serve as a significant reference for future development of self-care management and health quality of life improvement and health policies among adolescents with organ transplants and other chronic diseases.
Notes
Reference list included in separate file attached to this item record.
Sigma Membership
Non-member
Type
Poster
Format Type
Text-based Document
Study Design/Type
Other
Research Approach
Mixed/Multi Method Research
Keywords:
Advancing Clinical Practice, Pediatrics, Liver Transplantation, Quality of Life, Self-Care, Health Self-Care
Recommended Citation
Chang, Ya-Hui; Gau, Bih-Shya; Ho, Ming-Chih; Wu, Jia-Feng; and Yang, Hsiao-Ling, "Adolescent with Pediatric Liver Transplantation: The Perspectives of Quality of Life and Self-Care" (2026). International Nursing Research Congress (INRC). 6.
https://www.sigmarepository.org/inrc/2026/posters_2026/6
Conference Name
37th International Nursing Research Congress
Conference Host
Sigma Theta Tau International
Conference Location
Toronto, Ontario, Canada
Conference Year
2026
Rights Holder
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record. All permission requests should be directed accordingly and not to the Sigma Repository. All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Review Type
Abstract Review Only: Reviewed by Event Host
Acquisition
Proxy-submission
Date of Issue
2026-07-20
Adolescent with Pediatric Liver Transplantation: The Perspectives of Quality of Life and Self-Care
Toronto, Ontario, Canada
Background and Significance: Many children with end-stage liver disease have their lives extended by liver transplantation, growing into adolescence and even adulthood. Therefore, it is important to understand the long-term health outcomes of liver transplantation and provide relevant assistance during this developmental process. However, there is a lack of domestic research on the long-term and comprehensive health outcomes of pediatric liver transplantation, and less attention is paid to the children's own self-care ability and development.
Objective: To understand the attributes, health-related quality of life, and chronic disease self-care ability of adolescents who have received liver transplantation in early childhood and entered puberty, and to explore the correlation between health quality of life and chronic disease self-care ability.
Method: This study will employ a mixed-method convergent parallel design to recruit adolescents who had previously undergone liver transplantation. The quantitative research phase will use a structured questionnaire to collect data, including basic personal information, long-term health status, PedsQL generic core scale 4.0 (13-18 years old), and Self-Care of Chronic Illness Inventory V4c. Simultaneously, a qualitative study will be conducted using semi-structured interviews to collect data. The interview guides include the impact of liver transplantation on the individual, their life, and their family, as well as their hopes for support from medical professionals and parents.
Quantitative data were analyzed using SPSS 16.0 software, including descriptive statistics, independent t-test, one-way analysis of variance, linear regression and Pearson product-moment correlation. Qualitative data were analyzed using NVivo software, and thematic analysis was used to summarize the data themes.
Expected outcomes: The study outcomes are expected to provide comprehensive information on the current status of liver transplant adolescents' health quality of life and chronic disease self-care capabilities. This will serve as a significant reference for future development of self-care management and health quality of life improvement and health policies among adolescents with organ transplants and other chronic diseases.
Description
To understand the attributes, health-related quality of life, and chronic disease self-care ability of adolescents who have received pediatric liver transplantation, and to explore the correlation between health quality of life and chronic disease self-care ability.
This study will employ a mixed-method convergent parallel design to recruit adolescents who had previously undergone liver transplantation, are expected to provide comprehensive information on the current situation.