Abstract

As of 2020, in the United States, over one million individuals have Inflammatory Bowel Disease (IBD) with 10% requiring intestinal ostomy formation.1,2 Health-related quality of life (HRQOL) can be impacted by the presence of an ostomy.3 IBD is typically diagnosed in young adults, presenting unique social and psychological concerns if an ostomy is required for treatment.4,5 This study determines if demographic factors are related to HRQOL in young adults living with an ostomy and IBD.

A convenience sample of participants was recruited from online support groups, collecting demographic data in 2018. HRQOL was measured using the Health Days Core Module. Hierarchal linear regression and one-way ANOVA testing were performed to understand the relationships between demographic variables and HRQOL.

Statistically significant differences in HRQOL scores were noted between groups for marital and employment status. This study shows that HRQOL is significantly impacted by demographic variables, beyond clinical factors. Nursing practice can benefit to provide support improving HRQOL in this population.

Notes

References:

1. Rowe WA, Lichtenstein GR. What is the prevalence of inflammatory bowel disease (IBD) in the US? Medscape. Retrieved from ww.medscape.com. 2020.

2. Stroie T, Preda C, Meianu C, Crortoran, et al. Health-related quality of life in patient with inflammatory bowel disease in clinical remission: what should we look out for? Medicina (B Aires). 2022;58(4);486-497. doi: 10.3390/medicina58040486.

3. Davis D, Ramamoorthy L, Potttakkat B. Impact of stoma on lifestyle and health-
related quality of life in patients living with a stoma: a cross-sectional study. J of Educ Health Promot. 2020;9(1):328-334. doi: 10.4103/jehp.jehp_256_20.

4. Katz JA, Melmed G, Herrinton LJ, et al. The Facts About Inflammatory Bowel Disease. New York, NY. Crohn’s & Colitis Foundation of America; 2014.

5. Strapersma L, Van Den Brink G, Van Der Ende J, et al. (2019). Illness perceptions and depression associated with health-related quality of life in youth with inflammatory bowel disease. Int J Behav Med. 2019;26(4):415-426. doi: 10.1007/s12529-019-09791-6.

Description

Diving into how demographic factors can influence health-related quality of life (HRQOL) in younger individuals with Inflammatory Bowel Disease (IBD) and an ostomy, this study presents details and new findings to enhance nursing practice and patient outcomes in this under-studied patient population.

Author Details

As shown on poster: Caitlin Werther, PhD, APN Director, Family Nurse Practitioner Program and Assistant Professor

Sigma Membership

Epsilon Rho

Type

Poster

Format Type

Text-based Document

Study Design/Type

N/A

Research Approach

N/A

Keywords:

Primary Care, Inflammatory Bowel Disease, IBD, Ostomy, Quality of Life

Conference Name

36th International Nursing Research Congress

Conference Host

Sigma Theta Tau International

Conference Location

Seattle, Washington, USA

Conference Year

2025

Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

Review Type

Abstract Review Only: Reviewed by Event Host

Acquisition

Proxy-submission

Click on the above link to access the poster.

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Demographic Factors and HRQOL in Younger Persons with an Ostomy and IBD

Seattle, Washington, USA

As of 2020, in the United States, over one million individuals have Inflammatory Bowel Disease (IBD) with 10% requiring intestinal ostomy formation.1,2 Health-related quality of life (HRQOL) can be impacted by the presence of an ostomy.3 IBD is typically diagnosed in young adults, presenting unique social and psychological concerns if an ostomy is required for treatment.4,5 This study determines if demographic factors are related to HRQOL in young adults living with an ostomy and IBD.

A convenience sample of participants was recruited from online support groups, collecting demographic data in 2018. HRQOL was measured using the Health Days Core Module. Hierarchal linear regression and one-way ANOVA testing were performed to understand the relationships between demographic variables and HRQOL.

Statistically significant differences in HRQOL scores were noted between groups for marital and employment status. This study shows that HRQOL is significantly impacted by demographic variables, beyond clinical factors. Nursing practice can benefit to provide support improving HRQOL in this population.